Wishes and Rainbows
Wishes and Rainbows is a non-profit organization devoted to helping those with ACM, SM and other chronic conditions. They assist those in need with medical costs, travel and personal expenses, projects and programs designed to get information to those without computer access and scholastic programs for in-home tutoring or schooling.
The Invisible Disabilities Advocate
"Do your loved ones have a hard time understanding how your symptoms such as extreme fatigue, pain, dizziness and cognitive impairments can be debilitating? The Invisible Disabilities Advocate strives to help friends and family better understand chronic illness and pain, as well as learn how to be a source of encouragement and support." They offer articles, booklets, pamphlets, links, an online support group, a discount book store, t-shirts and more.
But You Don't Look Sick
This website is about living life to the fullest with any disability, invisible disease, or chronic pain. Be sure to to read Christine Miserandino's amazing analogy of what it is like to live with sickness or disability: The Spoon Theory
A Guide to Handling Disputes with Your Employer or Private Health Plan
Help with understanding what kind of insurance coverage you have and how to handle complaints and appeals by the The Kaiser Family Foundation and the Consumers Union.
The Family and Medical Leave Act (FMLA)
An overview of FMLA by the US Dept. of Labor
Benefits For People With Disabilities
If you need information about Social Security and Supplemental Security Income disability programs, a good place to start would be the article Applying for Social Security Disability on Chronic Pain Connections Website.
You can find information from the US Government about Social Security Disability Insurance - which pays benefits to you and certain members of your family if you are "insured," meaning that you worked long enough and paid Social Security taxes and Supplemental Security Income - which pays benefits based on financial need by clicking on the underlined words above.
Chiari Connection International (CCI) has some good disability hints on their website along with copies of the forms they use for Residual Function Capacity Assesment.
More help can be found at the website Disability Secrets. This site helps answer questions about how the disability process really works, from the perspective of a former disability claims examiner. It focuses on the disability evaluation process including applications, denials, appeals, and awards.
Patient assistance programs are run by pharmaceutical companies to provide free medications to people who cannot afford their medicine. RxAssist offers a comprehensive database of these programs, as well as practical tools, news, and articles for health care professionals and patients.
All the information on pharmaceutical patient assistance programs, plus hundreds of other programs, is available here for free. For more information about NeedyMeds.com, please see the comments left by Rich Sagall MD, at the end of this posting.